The Survivor Clinic aims to teach and assist learners to become as independent as possible in preparation for the adult world. When a child goes onto a well-controlled continence programme, he and his family can participate in so much more. Imagine going to a movie or eating out at a restaurant without the fear of a slip up. Most organisations demand that a person joining them has their continence under control. To do so will demand commitment from the child’s parents/caregivers in terms of time and obtaining products to keep their child’s programme going.
The following will be expected of parents/caregivers:
Step 1: Parent visit
As a parent/caregiver of a new learner who will require continence care a visit to the clinic to see what will be done with their child has to take place. After the visit they may decide whether or not they want their child to go onto our continence programme.
Step 2: Consent to attend clinic
Only children whose parents/caregivers have given parental consent will be managed at the survivor clinic. Parents/caregivers must complete the consent forms as soon as possible and send them to the school nurse, Mrs Annette Kellner, or the Staff nurse in charge of the survivor clinic, Mrs Charmaine Titus.
Step 3: Specialist supervision
All cases of incontinence have to be investigated by a specialist. Therefore all the children attending the survivor clinic should be on a continence programme prescribed by a specialist. This may be arranged with Professor Haffegee’s section at Johannesburg Hospital or parents/caregivers own private urologist and/or gastro-enterologist.
Parents have to accompany their children for these visits. The school arranges transport for learners and parents for the first visit as well as routine follow-up visits once a term. Transportation for other visits remains the parents responsibility. The urology department will do certain tests on a child referred to them. Parents need to take their child in for these tests using their own transport. These include:
- A urodynamic study.
- sonar of the bladder.
- Blood tests to determine kidney function.
In some instances medication will be prescribed. During this visit parents/caregivers should speak to the hospital about other continence needs such as disposable nappies/pads and suppositories.
Some learners will be taught to perform intermittent catheterisation and will be supplied with catheters and lubricating gel.
Step 4: Provide the clinic with a child’s supplies
All parents/caregivers will be sent a list of requirements to be kept at the clinic for their children. This includes a fresh change of clothing in a 5 litre ice cream container to be kept in case of a mishap. A full list of supplies is available.
Step 4: Attend a training session at survivor clinic
All parents/caregivers are required to visit the survivor clinic to learn how their child has to be managed. When a child is home for the weekend or school holidays, parents have to be able to continue with their child’s programme. To learn how to do so they should make an appointment with the school nurse.